Despite her enthusiasm and zest for life, 9-year-old Alannah suffers from an undiagnosed genetic syndrome and Developmental Epileptic Encephalopathy which is a severe, refractory epilepsy.
Alannah’s parents Caroline and Chris access respite through Very Special Kids Hospice several times a year. “This is Alannah's 'special holiday' time; she just loves all the attention from the nurses and volunteers” says Caroline her mother.
Read the full Kiefer story on our website and find out how you can help support by participating in a new 27km walking event called ‘Walk for Phil’ raising funds for Very Special Kids like Alannah. www.vsk.org.au
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